To Learn More About Alzheimer's Disease
To Build a Family Health History
- "My Family Health Portrait," U.S. Surgeon General's Family History Initiative
- National Society of Genetic Counselors: Collecting Your Family History
- American Medical Association
- Genetic Alliance
To Understand the APOE Gene Test
To Consider Timing Issues
- National Society of Genetic Counselors statement on genetic testing of children for adult-onset disorders
- American Medical Association, Opinion 2.138 - Genetic Testing of Children
To Evaluate Advantages and Disadvantages of Genetic Testing
- NIH Genetics Home Reference on Genetic Testing
- Zallen, Doris Teichler, To Test or Not to Test: A Guide to Genetic Screening and Risk (Rutgers University Press: 2008)
- National Human Genome Research on Genetic Discrimination
- Genetics And Health Insurance State Anti-Discrimination Laws (2008)
How to Participate in Research
- The Alzheimer Association TrialMatch Website: www.alz.org/TrialMatch
- The Alzheimer's Disease Education and Referral (ADEAR) Center: www.nia.nih.gov/alzheimers/clinical-trials
To Locate Genetic Professionals in your Area
- National Society of Genetic Counselors
- The American College of Medical Genetics — Find Genetic Services
- J.C.S. Breitner et al., "APOE-e4 count predicts age when prevalence of AD increases, then declines: The Cache County Study," Neurology 53:321-331 (1999).
- K.D. Christensen et al., "Incorporating ethnicity into genetic assessment for Alzheimer's disease: the REVEAL study experience," Genetics in Medicine 10:207-214 (2008).
- S. Seshadri and P.A. Wolf, "Lifetime risk of stroke and dementia: current concepts, and estimates from the Framingham Study," The Lancet Neurology 6:1106-1114 (2007).